Psychometric testing of scales designed to monitor the psychosocial impact of arrhythmogenic right ventricular cardiomyopathy: a pilot study

Baker, Erin (2017) Psychometric testing of scales designed to monitor the psychosocial impact of arrhythmogenic right ventricular cardiomyopathy: a pilot study. Masters thesis, Memorial University of Newfoundland.

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Abstract

This pilot study validated two psychometric scales, the Psychosocial Adjustment to Hereditary Disease (PAHD) and the Hereditary Diseases and Genetic Testing (HD-GT) scales, for use in the Newfoundland and Labrador Arrhythmogenic Right Ventricular Cardiomyopathy population. Both scales were previously validated in the Newfoundland hereditary non-polyposis colorectal cancer (HNPCC) population. The target population for this study was individuals born at an a priori 50% risk for the TMEM43 mutation that causes ARVC who had undergone genetic testing. In total, 73 participants returned completed surveys. Psychometric testing of both scales followed the procedures outlined by Ware and Gandek (1998) and demonstrated satisfactory data quality, reliability and validity. Results indicated potential usefulness in the ARVC population warranting analysis with a larger sample size. No large-scale differences were found between carriers and non-carriers; however, small differences in particular aspects of psychosocial adjustment based on gender, gender of transmitting parent, and age were found.

Item Type: Thesis (Masters)
URI: http://research.library.mun.ca/id/eprint/12559
Item ID: 12559
Additional Information: Includes bibliographical references (pages 90-107).
Keywords: ARVC, psychosocial, psychometric, adjustment, cardiomyopathy, arrhythmogenic
Department(s): Medicine, Faculty of
Date: May 2017
Date Type: Submission
Library of Congress Subject Heading: Myocardium -- Diseases; Psychometrics; Social adjustment
Medical Subject Heading: Arrhythmogenic Right Ventricular Dysplasia; Psychometrics; Social Adjustment

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