A qualitative exploration of how children born preterm transition to primary school: an instrumental multiple case study

Lewis-Power, Nicole (2023) A qualitative exploration of how children born preterm transition to primary school: an instrumental multiple case study. Doctoral (PhD) thesis, Memorial University of Newfoundland.

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Abstract

Background: Given the prevalence of preterm birth, the survival rates, the complex health challenges that result from being born too soon and the costs related to this issue, it is vital the resources needed by these families are made available. These children deserve a fair and equitable education, the same as children born at term; therefore, it is essential resources and services are put in place for these families to avail of while at school and when at home. These resources and services should be available in all communities across our province. Goals/Objectives: Research Question: How does a child born preterm (who currently has one or more disabling health challenges) and their parents experience entering the public school system? Research Objectives: 1. To explore how families adjust to having a preterm baby with health challenges (including their time in the NICU and going home). 2. To investigate the factors within the school, their community, and the province that influence their child’s ability to achieve the best possible educational outcomes. 3. To determine whether the school’s size (large versus small) made a difference in how the child transitioned into school. 4. To explore whether more supports are available for the child/family depending on where they live (urban versus rural). Methodology/Methods: This research study used a multiple-case study constructivist design. Eight instrumental, bounded cases were examined using multiple data collection methods, including direct observation, interviews, and document analysis. Results: All families coped well with their children entering public school. While some encountered more challenges than others, their children have adapted well overall with the help of their circle of care members. This dissertation's findings include both benefits and drawbacks to attending large versus small schools, the empowerment of insider knowledge, and the need for more information regarding the services/resources available to these parents in this province. Lastly, it found that financial help is needed for these families. This project has numerous recommendations aimed at supporting the transition from home to school and ones that would be helpful to families that have children born preterm and have a health challenge.

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