The experiences of mothers caring for ventilator-dependent children: a phenomenological study

English, Denise M. (2003) The experiences of mothers caring for ventilator-dependent children: a phenomenological study. Masters thesis, Memorial University of Newfoundland.

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Abstract

There is an increase in the number of families caring for ventilator-dependent children at home. The experience of primary caregivers, usually mothers, providing care with complex technology is multifaceted. This study attempted to provide insight into the experiences of mothers caring for ventilator-dependent children using a phenomenological perspective. The participants included five mothers caring for their ventilator-dependent children. The data were collected by way of unstructured interviews. Through the use of van Manen's (1990) methodology, the thematic analysis identified five themes: (a) taking charge, (b) "full-time nurse, part-time mom", (c) loss of personal freedom, (d) forgotten mothers of forgotten children, and (e) thinking about the future. -- Findings of this qualitative study have implications for nursing practice, research, and education. They have particular relevance for policies regarding the provision of additional supports for mothers caring for their ventilator-dependent children at home. The findings will increase the knowledge base of nurses who have the potential to be key resources in the coordination of services once the child is discharged from hospital.

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