Barriers to access to and uptake of genetic services from the perspectives of genetic professionals

Darmonkow, Valerie Zdravka (2012) Barriers to access to and uptake of genetic services from the perspectives of genetic professionals. Masters thesis, Memorial University of Newfoundland.

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    Available under License - The author retains copyright ownership and moral rights in this thesis. Neither the thesis nor substantial extracts from it may be printed or otherwise reproduced without the author's permission.
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Abstract

This research examines barriers to the provision of genetic services from the perspectives of genetics professionals working in the province of Newfoundland and Labrador, Canada. Based on open-ended and semi-structured key informant interviews, the study assesses the structure and capacity of the Provincial Genetic Services Program, the referral process and protocols followed, and the social, historical, and cultural factors shaping the utilization of genetic services from the perspectives of those who provide the services. The thesis reports on the factors that support the use of genetic services and factors that deter or decrease this use. It identifies strategies for overcoming challenges to access to and uptake of genetic services. The key findings are incorporated into recommendations to help define areas and directions for improvements in clinical genetics and to provide advice for those who develop and deliver genetic services.

Item Type: Thesis (Masters)
URI: http://research.library.mun.ca/id/eprint/2330
Item ID: 2330
Additional Information: Includes bibliographical references (leaves 130-143).
Department(s): Medicine, Faculty of
Date: 2012
Date Type: Submission
Geographic Location: Canada--Newfoundland and Labrador
Library of Congress Subject Heading: Genetic counseling--Newfoundland and Labrador; Medical genetics--Newfoundland and Labrador; Genetic counselors--Newfoundland and Labrador--Attitudes
Medical Subject Heading: Genetic Counseling--Newfoundland and Labrador; Genetics, Medical--Newfoundland and Labrador; Genetic Services--Newfoundland and Labrador; Health Knowledge, Attitudes, Practice

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